#raredisease

We track 183 posts using #raredisease across 4 networks, carrying 14K engagement between them — an average of 76 per post.

It is used most on Bluesky: 180 of the 183 posts we hold, 98% of the total.

And Bluesky is not just where the volume is: it is also where the tag performs best per post, averaging 5.

Ranking comes from the posts themselves rather than from how often the tag appears, and it is recalculated as new posts are collected. How we measure this →