by @allyann.bsky.social
The #ChronicIllness Feed finds the following keywords: #ChronicIllness, #ChronicPain, #RareDisease and #InvisibleIllness For other keywords, please see pinned post.
The hashtags that come up most in this feed. The fastest read of its actual subject, rather than its description.
The most-liked posts we have captured from #ChronicIllness. Links go to the original on Bluesky.
So #MitchMcConnell just gets to be dead & no one cares anymore? He just keeps collecting a paycheck, taking unlimited time off & everyone shrugs? I'm a teacher fighting stage 4 #cancer & if I was even 10 minutes late to work, I'd hear ab…
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "tre…
📌 #ChronicIllness Pinned Post 📌 This feed pulls in posts with the keywords of #ChronicIllness, #ChronicPain, #rareDisease, and #InvisiableIllness This feed can be found at bsky.app/profile/did:... Other keywords the feed pulls in can …
Someone explain this to medical doctors--if seniors are getting any sort of relief from something natural, with little to no real harmful side effects, LET THEM. #cannabis #arthritis 💚🥦🌱 #deschedulecannabis
"The work and everyday labor of living with ME/CFS contains this recursive loop of everyday labor of being ill." For @motherjones.com, I interviewed @elimrogers.bsky.social on her book tracing the history of ME/CFS and what it's like to …
Long COVID is not a mystery anymore. The field is finally moving from “What is happening?” to “How do we fix it?” 🧬 A must-read Nature feature on where the science is heading: www.nature.com/articles/d41... #LongCovid
While there are horror stories from many countries, the Netherlands and Sweden really stand out. They might be very "civilised" in some respects, but on ME/CFS they seem to be in the Dark Ages.
Der gestrige Arzttermin hat mir nach längerer Zeit wieder schmerzlich bewusst gemacht, wie weit wir davon entfernt sind, dass Menschen mit ME/CFS zum Arzt gehen und nicht wie ein Haufen Scheiße behandelt werden
STIKO hebt breite #CoronaImpfempfehlung auf. Warum das wissenschaftlich problematisch ist: #SARS-CoV-2 Variantendrift: Natürliche Immunität & alte Booster bieten gegen aktuelle Omikron-Linien oft nur geringe Neutralisation. Hohe Viruslas…
Assistierter Suizid wegen ME/CFS „Kathis Tod soll nicht umsonst gewesen sein“ - Charity-Event in Köln Enge Freundinnen der Kölnerin, die mit 30 verstarb, kämpfen nun für mehr Forschung im Bereich der bisher unheilbaren Krankheit. www.k…
Wir versuchen hier immer zu zeigen, zu beschreiben, wie es vielen ME/CFS-Betroffenen, vor allem Kindern, ergeht. Doch obwohl das gelesen wird, haben Menschen, die nicht selbst betroffen sind (als Erkrankte oder Zugehörige) keine Vorstellu…
Würde #MECFS von Ärzten endlich anerkannt, würde auch die Schwere der Erkrankung verstanden und erhielten die Betroffenen selbstverständlich angemessene Unterstützung, hätte assistierter Suizid bei ME/CFS nicht diese Bedeutung. Danke, lie…
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